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About the Fundraiser
JIYENGE TEAM is helping to raise funds for BABY ELLEN who is suffering from SMA TYPE - 1, (children with sma type-1 die after there 2nd birthday. Comparing to sma type -2 & type -3... Sma type -1 is very dangerous.).
Most of the Children with SMA Type1,They haven't survived till reaching their 2nd Birthday.
Unfortunately Ellen has Diagnosed with this life threatening genetical disease and if Untreated Spinal Muscular Atrophy Type1 may take away Ellen's life.She has very less time to Survive.
Zolgensma Gene therapy is the Only Option to Save ELLEN's life and the Zolgensma drug need to Import from United States.
Their parents have taken the Zolgensma drug Import License from CENTRAL DRUG STANDARD CONTROL ORGANISATION,MINISTRY OF HEALTH,GOVERNMENT OF INDIA, but due to insufficient funds,they couldn't able to afford the Treatment.
Your Contribution is the Only hope to save Ellens Life and to give her a chance to Live a normal life.
Please contribute as much as you can and share this information to all your friends and family Members.
The funds which we have received through jiyenge upi/Gpay or Phonepe (9701849704) will be added as JIYENGE UPI in the bottom of supporters list. The amount will be added at end of the day/twice a day.
My name is Rayapudi Praveen and I am here to raise funds for my daughter ELLEN who is 20months old.
Ellen has been diagnosed with Spinal Muscular Atrophy (SMA) type 1 - a rare disease that affects almost 1 in 10,000 babies worldwide.
This disease progresses rapidly and in most cases kills the child before they turn 2 years old.
Treatment Options: Zolgensma Gene Therapy is a potential cure for SMA for children below two years of age and it has to be imported from the USA. Baby Ellen needs it as soon as possible to save her life. Zolgensma Gene Therapy is a one-time gene replacement therapy, and it needs to be imported. Called the world's costliest drug, it costs 16 crore rupees and is more expensive than any family can afford alone.
Until now for her treatments and medications, we've spent about Rs.3,00,000. which we arranged from savings & loans. But In the next few days, we need Rs.16,00,00,000 (???????Rs -16crores) more for the Zolgensma Gene Therapy treatment.
Any contribution will be of immense help. Please share, support & contribute as much as possible. Nothing is small or big. Every penny counts. Thank you all in advance.
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