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About the Fundraiser
JIYENGE TEAM is helping to raise funds for BABY SHIVAMANI who is suffering from SMA TYPE - 1, (children with sma type-1 die after there 2nd birthday. Comparing to sma type -2 & type -3... Sma type -1 is very dangerous.).
Most of the Children with SMA Type1,They haven't survived till reaching their 2nd Birthday.
Unfortunately Baby Shivamani has Diagnosed with this life threatening genetical disease and if Untreated Spinal Muscular Atrophy Type1 may take away Shivamani's life. He has very less time to Survive.
Zolgensma Gene therapy is the Only Option to Save Shivamani's life and the Zolgensma drug need to Import from United States.
The baby couldn't walk and can't breathe properly.
Their parents have taken the Zolgensma drug Import License from CENTRAL DRUG STANDARD CONTROL ORGANISATION,MINISTRY OF HEALTH,GOVERNMENT OF INDIA, but due to insufficient funds,they couldn't able to afford the Treatment.
Your Contribution is the Only hope to save Shivamani Life and to give his a chance to Live a normal life.
Please contribute as much as you can and share this information to all your friends and family Members.
The funds which we have received through jiyenge upi/Gpay or Phonepe (9701849704) will be added as JIYENGE UPI in the bottom of supporters list. The amount will be added at end of the day/twice a day.
Any contribution will be of immense help. Please share, support & contribute as much as possible. Nothing is small or big. Every penny counts. Thank you all in advance.
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